Among the people I interviewed for the book, most had the hardest time when their symptoms first arose, so that as time went on they weren't as afflicted.  But few reported feeling entirely free of vertigo and its related symptoms.  Many with benign positional vertigo found the Epley Maneuver (or similar maneuvers) to be extremely helpful, but for Menière's Disease there was less clarity about helpful treatment.  Thus, a blog about treatments that appear to have cured, or markedly reduced the symptoms of Menière's, could be very helpful.  (I'm thinking of Alan Shepard, the astronaut who was permitted to fly to the moon based on the conviction that he was cured after endolymphatic shunt surgery.)  Thus, if you have a diagnosis of Menière's Disease, or episodic vertigo that is accompanied by fluctuating hearing loss, and the symptoms seem to have been responsive to treatment, tell us about what it was that made the difference.   Please also include a brief sketch of the course of your illness. 
 


Marian Willmott
01/07/2014 5:55pm

I like your book

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David Friedlander
07/25/2014 8:47am

Hi Linda, your book was awesome. Thank you for publishing it. I am in the process of trying to track what sets my Vertigo off, or, gives me that spinning feeling. I participate in a lot of corporate meetings and have found that fluorescent lights (especially if there is a blinking bulb) tend to do me in. Also, standing at the top of a flight of stairs or certain heights and clearly standing up to quickly if I've been in a sitting position for 15 or 20 minutes or more. Anyway, thank you again, your book was invaluable! Dave

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Linda Zonana
09/30/2014 10:38am

I can't tell from this passage how intense the vertigo is when set off by heights or standing up. I've always been prone to a woozy feeling when peering over a height, but this doesn't seem the same as the vertigo experienced as a result of Menière's. I do notice that whenever I'm doing something now that substantially increases my heart rate or makes me light headed that that sensation is more pronounced now than previously.

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Peggy McGowan
10/08/2014 9:44pm

Hi David...I was diagnosed with MD in 2008; having had many, many bouts of vertigo and, yes, I too found that lighting was a trigger. To date, I have my office on low lights (I actually have small Christmas lights hanging from the ceiling!) and it's much more comfortable. I had my ear "killed" in 2011 @ Silverstein Institute because treatment for me in New England was not getting anywhere and the attacks were happening daily - as I teach, Valium was not an option; but one that I was told "all I had". Not acceptable. I have not had an attack since Jan. 2011; I have compromised my hearing in that ear, but to me a small sacrifice as I couldn't live with the vertigo much longer. I did find, and still do find, that a low-salt diet helps tremendously - I am very disciplined with my diet, exercise, etc. which helps alot. Limited, or NO alcohol, caffeine....these were triggers too.....I am glad Linda wrote this book - I was at a point where I wanted more people to talk to who truly understand what MD does to your life & how to deal - more helpful to me than being handed a pamphlet in the Dr's office. I wish you all the best. You CAN feel better!

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Linda Zonana
10/09/2014 11:07am

Peggy - I am so glad you are still doing well. I'd been wondering about it. One of my original thoughts was to write up treatments that helped, and in this case you mention both the gentamicin and the dietary recommendations. I continue to be surprised that gentamicin isn't suggested to more people if they've been overwhelmed by their sx for an appreciable period of time. With regard to following the salt and other restrictions, I'm interested that this still makes a difference after the Silverstein treatment.

David Friedlander
10/09/2014 3:13pm

Hi Peggy, thanks so much for your support and thoughts. I changed my office lights from fluorescent bulbs to an incandescent set up and that has been huge. Would love to hear more about what you mean by having your ear killed. My tinnitus is one of the more annoying issues that I'm dealing with but I realize that the buzzing or piercing note that I hear from time to time is generated from the brain, not the inner ear set up and two different neurologists have said that "you will get used to it in time." I let them know that comments like that are very frustrating. "Sorry you're _____(fill in the blank with anything) but you'll get used to it in time." Doctors should remove that from their vocabulary! Anyway, I suspect that you did what you did to help your balance issues?

Great advice about eating healthy. I actually don't drink and believe it or not, do not drink coffee or caffeinated beverages! I am guilty of using salt which I have basically eliminated as much as possible. Once one starts reviewing ingredients, it is amazing how much salt is in certain products.

Linda's book was a Godsend for me and I let her know how much I appreciated reading it (multiple times.) Going through anything that is debilitating but yet doesn't have concrete, similar symptoms and diagnosis is mitigated by knowing that others can relate for sure! Which is why I appreciate your feedback too. Thanks again, Dave

Andrew Edmonds
09/29/2014 3:19pm

Thank you for writing this.
You asked three questions between your email and this post, so I'll try to answer them as best I can.
1. What precipitates an episode of Vertigo? No clue. I am lucky in that I haven't had one in some time and they became further part as the years wore on. They never seemed to be a pattern or an obvious trigger, although It seems I was usually under unusual stress at the time.
2. How did I experience vertigo. For me, the world spun in circles, in opposite directions in each eye. Since the very first episode, which was more than a tiny bit terrifying, I have always had Valium and Compazine nearby, which when combined, knock me out for hours. I have always been unconscious for the later stages of the episode.
3. A low salt diet had no affect. In fact, nothing worked. Over time the episodes became less frequent. I still have the deafness and tinnitus.
4. As for the deafness and tinnitus, only one thing ever had any affect on me. Opti-Ray 320 contrast dye used for CAT scans. I had a CAT Scan, with the Opti-Ray 320 and within 20 minutes all the deafness and tinnitus were gone. It lasted about 10 days. It was the only new drug/food/change introduced to me within months of the event and it is far too coincidental to say for sure it was not responsible. However, I would have to have 100ccs of it again to test my theory and in the nearly ten years since then, I haven't found a doctor willing to prescribe it off label. When I spoke to the maker, Mallinckrodt, to try and get a list of active ingredients, they told me that it was so benign that it didn't really have "active" ingrediants and therefore could not have had any affect on me.
I guess I'll never know. Sad, because the tinnitus is exhausting.
Thanks again for your work.

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Peggy McGowan
10/08/2014 9:46pm

Hi Linda...I am SO thrilled that you did this book - I keep putting it down, picking it up......it stays in my living room and will remain there.....a reminder to me of what MD for me was like and how I am now. I am grateful to you and I will be mindful of the blogs. This is terrific and most helpful. I hope others can also benefit.

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Linda Zonana
10/09/2014 11:09am

Peggy - I couldn't be more delighted that you still find the book helpful, even after you were successful in finding effective treatment. Reading that really made my day.

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David Friedlander
10/09/2014 3:14pm

Linda, kudos for moving forward with the blog aspect of your calling! I for one certainly appreciate any and all thoughts! Thanks!! Dave

David Friedlander
10/09/2014 3:19pm

Has anyone tried any supplements for balance and / or vestibular issues? I've read several positive thoughts about lemon bioflavonoids, ginko biloba and vinpocetine. I am not a medicine taker and have never even thought about supplements in the past, but, would be curious of other's experiences and relief, if any, outcomes. Thank you

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